Recognising Diverse Needs during NAIDOC Week: Tracy’s Journey with Gynaecological Cancer

09 Jul 2024

During National Aboriginal and Islanders Day Observance Committee (NAIDOC) Week, we celebrate Tracy's journey.

Tracy, a proud Aboriginal woman, embodies determination and leadership. She has always been a go-getter. Unlike many in her community, she is confident, educated, and unafraid to ask questions. 

Her involvement with ANZGOG spans over the past couple of months and she was asked if she could travel to Wellington, New Zealand for the ANZGOG Annual Scientific Meeting (ASM) 2024, as a community volunteer with a lived experience of gynaecological cancer. She found it particularly uplifting that despite the professional backgrounds of the researchers and clinical staff—such as doctors and professors—they could engage in meaningful conversations on a personal level. This realisation reassured her that there was no divide between medical professionals and patients.

“I find that just because they're researchers and clinical staff, you know, doctors, professors, they're still people and we're able to have a general conversation. So, I find that really uplifting, I think, because, you know, there's no between. It's not them and us. So that's, that's reassuring that, you know, I matter.”

She expressed a belief in the significance of her involvement with ANZGOG, emphasising the critical role of gynaecological cancer research in improving health outcomes for patients diagnosed with gynaecological cancers.

“I feel if we don't have what we have with ANZGOG, research, how do we know something? How do we get better at the delivery of it all?? In regard to my mob, being Aboriginal, how do we break the stigma of going and, you know, getting an opinion or seeing a doctor, even making the first step? Woman's business is woman's business, but you need an intervention if you're sick.”

 

Tracy (second-right) with ANZGOG members at the ANZGOG 2024 Annual Scientific Meeting

Her proactive approach to health is a stark contrast to the stigma that often surrounds medical visits in Aboriginal communities. Tracy explains,

“I think in regards to Aboriginal people, they have the stigma of, you only go to the doctor and every time you go to the doctor, someone dies.”

This deeply ingrained fear can prevent many from seeking timely medical advice, leading to late diagnoses and poorer outcomes. Tracy’s journey with cancer highlights the importance of changing this narrative. She says, 

“It’s changing how we get better at educating them,” she says. For Tracy, understanding her diagnosis was crucial."

Her inquisitive nature and determination to understand her condition set her apart, but she acknowledges that not everyone in her community shares this approach. When discussing equity, inclusion, and diversity, Tracy points out the challenges faced by those who are less outspoken. Tracy emphasises the need for better communication and targeted outreach to this cohort. Ensuring that Aboriginal communities receive the same information and opportunities as others is crucial in improving health outcomes.

"There's a cohort of my mob that aren't. They are very shy, their, their stigma still sticks with, you know, colonization, etc. How do we get better at targeting or attracting? that little cohort, because that's the cohort that in the last, you know, couple of years, uh, have died from preventable cancers, because we haven't gone from A to B. We've gotten to A and we've just taken the gospel from the doctor to say, I have cancer, so I'm just going to sit in the community and die.  And the bits, um, sometimes the how to communication is, is one of the issues or the barriers and fed the same information that other communities might be, then you miss out on those opportunities to pick that up and take it to your doctor."

Tracy pictured above, (third from left, front row) amongst some of ANZGOG‘s Community Volunteers. A diverse range of voices and experiences from volunteers like Tracy is crucial to ANZGOG.

The importance of equity, inclusion, diversity in healthcare

ANZGOG recognises these diverse needs and believes that everybody deserves equity in access to gynaecological cancer care. By sharing stories like Tracy’s, ANZGOG aims to highlight the importance of culturally sensitive healthcare and the need for ongoing education for those who deliver gynaecological cancer care and also improved support within Aboriginal communities. Through collaborative efforts and community outreach, ANZGOG strives to ensure that all women, regardless of their background, have access to the care and information they need to manage gynaecological cancers.